Rare disease patients get treated

Almost two years to believe that she was alone in the country and almost sentenced to death because the diagnosis of rare primary pulmonary hypertension disease whose monthly treatment costs RD$ 126,500, today Yanira Poland sees its future in a different way and ensures that it has returned to life.

After publishing its case in LISTÍN DIARIO, achieved national and international contacts; emerged a group of doctors and family support; receives each month the medication supplied by the Ministry of public health and created a foundation in which there are already 30 people with the same condition, two of them teenagers.

But many are still the needs of patients diagnosed with this rare disease, which is why Yanira, along with the doctor Rafael Bello Díaz, who at all times has lent support, seeks to draw the attention of the country on the need for guidance to doctors learn to diagnose, as if it took him a year and six u000amonths, subjected to all kinds of studies, knowing that the suffering.

then she stood virtually bedridden, due to shortness of breath which featured, so walking is made virtually impossible and should sleep connected to oxygen.

Their cry is also so that all patients in his condition have access to treatment, because public health covers only a part of them; that will reduce bureaucratic red tape in the Ministry that sometimes it takes months, time in which the patient deteriorates, and for which the Dominican Social security system gives coverage within diseases catastrophic.

to visit for the second time newspaper LISTÍN, Yanira offered details of the activities carried out in the country by the Foundation to pulmonary hypertension, and on the meeting scheduled for next Thursday on the occasion of celebrating the 28th of this month the Latino day to the u000aHypertension pulmonary.

Thursday 24, reported the beautiful doctor Díaz, Vice-Rector of the virtual campus of the Catholic University of Santo Domingo, will take place at 10: 00 a.m., in the Auditorium of this center of studies, a Conference in charge of Dr. Murcy Contreras, with satellite broadcast with Dr. Jaime Morales, from Mexico, about this disease.

They are important that educational campaigns be initiated in the country that is guidance thereon to universities, medical students and that the country will be set up a laboratory of genetics, so that it can be identified in time if the child was born with the gene that causes this deficiency.

Yanira continues to work at the Catholic University of Santo Domingo, where is also the Foundation.

On disease
La hypertension pulmonary (HP) is a genetic disease that affects the lungs and heart. Is characterized by the presence of u000ahigh blood pressure in the arteries of the lungs.

There are five types. He is estimated that the pulmonary arterial is the most severe and its prevalence is estimated to be 50 cases for every million people. Their most common symptoms are shortness of breath, difficulty breathing, dizziness, exhaustion and bluish color to lips. Diagnosis can be confused with asthma or other diseases.

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